NEW! SSA Releases New Publications to Assist SCD Warriors with SSA Disability Evaluation Process
The Social Security Administration (SSA) released a new publication to help individuals living with sickle cell disease understand and...
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SCDF Staff
Oct 11 min read
California Department of Public Health Releases Updated Parent and Caregiver Handbook for Sickle Cell
Exciting news! A new and improved Parent and Caregiver Handbook for Sickle Cell is available in English and Spanish. This comprehensive...
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SCDF Staff
Oct 11 min read
Pfizer Voluntarily Withdraws All Lots of Sickle Cell Disease Treatment OXBRYTA® (voxelotor) From Worldwide Markets
NEW YORK--(BUSINESS WIRE)-- Pfizer Inc. (NYSE: PFE) announced today that it is voluntarily withdrawing all lots of OXBRYTA ® (voxelotor)...
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SCDF Staff
Sep 103 min read
Sickle Cell Disease Foundation Kicks Off Sickle Cell Disease Awareness Month with Special Events and Toolkit Release
(Ontario, CA) – The Sickle Cell Disease Foundation (SCDF) is rallying communities, health care providers, and policymakers to recognize...
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SCDF Staff
Jun 173 min read
California Needs to Keep Funding Sickle Cell Care. Will It?
Despite cutting-edge treatments, many patients—mainly Black and brown—don’t even get basic support.
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SCDF Staff
Jun 173 min read
PAINFULLY AWARE: Understanding Sickle Cell and Its Impact on The African American Community
PAINFULLY AWARE: Understanding Sickle Cell and Its Impact on The African American Community
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SCDF Staff
May 161 min read
After living with sickle cell disease for 39 years, I’m both excited and skeptical about the newly approved gene therapies
After living with sickle cell disease for 39 years, I’m both excited and skeptical about the newly approved gene therapies
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SCDF Staff
Mar 14 min read
FDA Approves First Gene Therapies to Treat Patients with Sickle Cell Disease
December 8, 2023. Today the U.S. Food and Drug Administration approved two milestone treatments, Casgevy and Lyfgenia, representing the...
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SCDF Staff
Feb 212 min read
FDA Approves Novartis' Adakveo for Pain Events Associated with Sickle Cell Disease
The U.S.Food and Drug Administration (FDA)approvedNovartis’ Adakveo (crizanlizumab) to decrease the frequency of vaso-occlusive crises...
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SCDF Staff
Feb 213 min read
FDA Approves Oxbryta™, First Medicine Specifically Targeting the Root Cause of Sickle Cell Disease
Oxbryta (voxelotor), a first sickle cell treatment that works to stop the sickling and destruction of red blood cells that mark this...
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SCDF Staff
Feb 213 min read
NCSCC: Uplifting Sickle Cell Disease as a statewide priority
The Networking California for Sickle Cell Care Initiative (NCSCC) was developed through advocacy and stakeholder engagement supported by...
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