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SMS Privacy Statement

SMS Privacy Policy

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Sickle Cell Disease Foundation is committed to protecting your privacy. This Privacy Policy (the “Policy”) governs how we treat the Personal Information that we collect and receive from you in connection with your use of the SMS Service (“Service”), which we make available to you through a third-party service provider. This Policy is incorporated into the Terms of Service.

 

By using the Service, you agree to the terms of this Policy. SICKLE CELL DISEASE FOUNDATION reserves the right, in its sole discretion, to modify or change this Policy at any time with or without prior notice to you. The date of the last update will be posted at the top of this Policy for your convenience. This Policy, and any changes, are effective as soon as posted. Your continued use of the Service following the posting of any changes to the Policy constitutes your full acceptance of those changes.

 

“Personal Information” is information that individually identifies you, such as your mobile phone number or user/screen name, as well as the any Personal Information that you choose to include in messages you send through the Service.

 

What Personal Information is collected about you

 

Through the use of the Service, SICKLE CELL DISEASE FOUNDATION will receive the following information from our third party service provider: your mobile phone number when you send a text message to us, the text of messages that you send to other users of the Service, any user or screen name that you select in connection with the Service, as well as any comments or feedback regarding the Service that you send to us.

 

How SICKLE CELL DISEASE FOUNDATION uses Personal Information about you

 

We use Personal Information to (a) provide you with the Service, (b) process and respond to inquiries, (c) improve the Service, (d) if necessary, contact you with important announcements or messages, (e) conduct research, and (f) provide anonymous reporting for internal and external clients and partners.

 

Each message that you send through the Service (either to us or to other users of the Service) is stored on our servers. We retain these messages on our servers. SICKLE CELL DISEASE FOUNDATION utilizes servers and services owned by third parties. 

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Disclosure of your information

 

We will not rent or sell your Personal Information to other companies or individuals, unless we have your consent. We may use or disclose such information in any of the following limited circumstances: 

  • We have your consent.

  • We need to enforce our Terms of Service.

  • We provide such information to trusted businesses or persons for the sole purpose of processing Personal Information on our behalf. When this is done, it is subject to agreements that oblige those parties to process such information only on our instructions and in compliance with this Policy and appropriate confidentiality and security measures.  If the third party fails to comply with our terms, SICKLE CELL DISEASE FOUNDATION is not accountable in any way for any liability or reimbursement.

  • We provide such information to third parties who have entered into non-disclosure agreements with us.

  • We provide such information to a company controlled by, or under common control with, SICKLE CELL DISEASE FOUNDATION for any purpose permitted by this Policy.

  • We respond to subpoenas, court orders, or legal process, or to establish or exercise our legal rights, or the legal rights of others, or defend against legal claims.

  • We believe it is necessary to share Personal Information to investigate, prevent, or take action regarding illegal activities, suspected fraud, situations involving potential threats to the physical safety of any person, violations of SICKLE CELL DISEASE FOUNDATION’s Terms of Service, or as otherwise required by law.

  • We transfer Personal Information about you if SICKLE CELL DISEASE FOUNDATION is, or its assets are, acquired by or merged with another company.

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We may share aggregated information with others without further notice. An example of this would be the number of people who used the Service in a given month or the total number of texts sent in a given week.

 

Security

 

SICKLE CELL DISEASE FOUNDATION takes precautions to ensure the security of your Personal Information, including ensuring that our third party service providers protect the security of your Personal Information. However, we cannot guarantee that hackers or unauthorized personnel will not gain access to your Personal Information despite our efforts. You should note that in using the Service, your information will travel through third party infrastructures which are not under our control (such as a third party SMS delivery platform or your carrier network).

 

We cannot protect, nor does this Policy apply to, any information that you transmit to other users. You should never transmit personal or identifying information to other users.

 

Opting in

 

A mobile user might opt-in by:  

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  • Entering a phone number online,

  • Sending an Mobile Originating (MO) message containing an advertising keyword,

  • Filling out a paper form that includes their phone number, or

  • Signing up at a point-of-sale location.

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Opting out

 

User Opt-Out and Support: You may opt-out of the Service at any time. If you wish to opt- out of the Service and stop receiving mobile messages from us, or you no longer agree to these Mobile Messaging Terms, reply STOP, QUIT, CANCEL, OPT-OUT, and/or UNSUBSCRIBE to any mobile message from us. You may continue to receive text messages for a short period while we process your request and you may receive a one-time opt-out confirmation message. You understand and agree that the foregoing is the only reasonable method of opting out. For support, reply HELP to any mobile message from us.  

 

Our mobile messaging platform may not recognize requests that modify the foregoing commands, and you agree that we and our service providers will not be liable for failing to honor requests that do not comply with the requirements in these Mobile Messaging Terms. We may also change the telephone number or short code we use to operate the Service and we will notify you of any such change. You acknowledge that any requests sent to a telephone number or short code that has been changed may not be received by us and we will not be responsible for failing to honor a request sent to a telephone number or short code that has been changed.  

 

Children

 

The Service is not intended for children under 13, and SICKLE CELL DISEASE FOUNDATION does not knowingly collect information from children under the age of Children aged 13 or older should not submit any Personal Information without the permission of their parents or guardians. By using the Service, you are representing that you are at least 18, or that you are at least 13 years old and have your parents’ permission to use the service. 

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Intended audience

 

SICKLE CELL DISEASE FOUNDATION requires that users of this service be limited to US residents only.

 

Questions or concerns?

 

If you have any additional questions regarding this Policy, please feel free to contact us any time by emailing info@scdfc.org. 

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